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Four months ago, the circumference of Roona Begum's head was 94 centimeters -- almost triple the size of a normal baby -- due to ten liters of excess fluid inside her brain. Born in a remote village in northeastern India, Roona was diagnosed with an extreme form of hydrocephalus and was given only a few months to live."Day by day her head started growing bigger, she stopped wanting to eat, she would just lie in bed, it became very difficult for us to carry her and take her anywhere," Roona's father Abdul Rehman said. Before Roona underwent several surgeries to reduce the swelling, the skin of her head was stretched so far that it pulled her eyelids over her eyes, making it impossible for her to see. After five high-risk surgeries, Roona pulled through and her head is now down to a circumference of 58 cm. She can now move her head around, she is more playful and most importantly, she can see. Back in her village, Roona has become the center of attention. Its too early to tell if she will ever be completely normal -- several operations still lie ahead, but the signs so far are promising. The pictures may be difficult to look at, but 18-month-old Roona Begum's story of survival is remarkable.
Soon after she was born in a remote village in northeastern India, Roona was diagnosed with an extreme form of hydrocephalus -- a disorder causing cerebral fluid to build up in the brain.
Doctors had given Roona just a few months to live.
"Day-by-day, her head started growing bigger, she stopped wanting to eat, she would just lie in bed, it became very difficult for us to carry her and take her anywhere," says Roona's father Abdul Rehman says.
Roona's head grew to a circumference of 94 centimeters, almost triple the size of a normal baby.
There were ten liters of excess fluid inside her brain. Her head was so heavy she could barely move.
Hydrocephalus is more common among infants and older adults. The condition is caused by overproduction, obstruction or lack of absorption of the cerebral fluid in the brain.
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